Pages

Tuesday, April 7, 2009

The Hardest Words









Sorry
Image credit: Photo by
Bekah Stargazing on Flickr
Licensed under Creative Commons

My son Austen, like many other autistic individuals, does not like (or understand the purpose of) many of society's little pleasantries. He balks at words like hello, goodbye, please, sorry and thank you; anything that can appear in a conversation as part of a rote pattern rather than a unique communication. This can seem rude, especially when it comes to words like "sorry" and "thank you," which are supposed to convey emotions of regret or gratitude. It seems (at least to the neurotypical world) that if someone doesn't say "thank you," they don't feel thanks. That certainly may be the case at times, but Austen's difficulty in grasping the meaning of these stock phrases has made me realize how often I toss them out because it's what is expected, rather than because my own emotions are in line with the words.

A few days ago, Austen was picking up a bit of ribbon next to where our cat was sitting. The cat took this as an invitation to play, batted at the ribbon and scratched Austen's hand. It was a tiny scratch but Austen cried bitterly for fifteen minutes, stopping occasionally to inspect his finger and breaking into fresh tears each time he saw the thin red line on his finger. I sat next to him stroking his back and waited until he was composed enough to accept a bandaid. As soon as I had him settled, Janie and her friend Valerie came running into the room. Janie had fallen down and scraped the palms of her hands as she tried to catch herself. This was the time for saying neurotypical things like "oh, I'm sorry you hurt yourself" or "can I see your hand, please?" Austen's conversation didn't go that way, of course, but it was just as sincere.

"Let me see!" he said. Janie held out her palms. "Oh, you need two bandaids!  It's bad that you need two. See, I have a bandaid too. Kitty scratched me and I cried and cried. But good that you're not crying so much like I did. And you know what else is good? Valerie doesn't have any bandaids! Good that she didn't get hurt." I realized that all the things society wants to hear were there: "How are you? I'm sorry you got hurt. I empathize.  I'm glad to see you're going to be ok." But there was something else there that we don't usually celebrate: "You and I may be hurt, but let's be grateful that someone else we love is safe and well." In seeing the specific situation rather than tossing out the generic words I might have, Austen saw something that I would have missed: an opportunity for gratitude.

Of course, there are situations in which he does use the expected words (if in unexpected ways), and they're all the more meaningful for their rarity. A few months ago, I caught a stomach virus from Janie. I started to feel ill at the end of the day; Mark was on his way home and both kids were with me. On my way to the bathroom as the first wave of cramps and nausea hit me, I let the kids know that I was feeling sick like Janie had been, but that I was going to be ok and that Daddy would be home soon to help me take care of them. When Austen heard me vomiting, he asked from outside the bathroom door, "Do you have the throw ups, Mama?"

"Yep. I sure do, sweetie," I said.

"Oh, bad that you do," he said, and I heard him walk off. A few moments later, he wedged something into the door frame. It was a card from the board game Sorry!.

He said, "I put a Sorry card there for you, because I'm sorry you have the throw ups."

"Oh, I love that! Thank you so much, Austen." And that thank you, as I think Austen knows, didn't really feel sufficient to express my gratitude.

21 comments:

  1. I like Austen's way of putting the Sorry card there. It means a lot. I have a very good friend who is ADHD (mostly inattentive and undiagnosed). He often just doesn't answer when spoken to but zones out. I used to think that he was rude but have come to view his lack of response with compassion. He will eventually answer but evidently is processing the information before he does. It's different wiring from mine.
    ReplyDelete
  2. That was so sweet and smart of him!
    ReplyDelete
  3. (with tears for his sweet kindness) he cuts right to the core .... if only the rest of us could sometimes.
    ReplyDelete
  4. What a kind and sweet little boy.... HUGS!!
    ReplyDelete
  5. I really do belive from the depths of my soul that children can teach us so very much if we listen - like you do!
    ReplyDelete
  6. I think Austen is expressing himself just fine. I know many kids who are not as expressive or sorry or as sincere. His way of expressing apology and feeling empathy are true and real and come from the heart. He seems like a sweetheart.
    ReplyDelete
  7. How beautiful. One of the gifts of recovery seems to be that we slow down and notice these subtle little lessons from our kids. What a sweet and authentic gesture. It's so good to write down and remember these moments, so we have them later when frustration takes over.
    ReplyDelete
  8. There is so much we can learn from children. It's almost ironic that we think it's our job to teach them anything. Sincerity is what I'll take away from this post - I will try to be more sincere.
    ReplyDelete
  9. Putting words to emotions is challenging for most of us. I think Austen has it down pat.
    ReplyDelete
  10. Tears well in my eyes for Austen's authenticity.

    i find myself thinking, too, how many people would never allow themselves to see this side of him because their eyes are so fixated on the autism label. Boy, are they missing out. Neurotypical is so, so ... typical. Despite Austen's many challenges, he has a unique and genuine way of seeing his world. I love hearing about him. Your shiny, wonderful little tea pot. ;)

    Big Smooches to both of you.
    ReplyDelete
  11. I love the stories you share about your kids. I learn a lot from the sweet stories you share about Austen.
    ReplyDelete
  12. There is a girl in my son's class that is different. (I don't know her specific diagnosis and don't know another word to describe her. Please forgive me if different is wrong here.) Anyway, I overhear the other kids saying things like "[She] learns things differently than we do. Don't say that!" when sticking up for her. I love it. They get her because she's always been around them. They play with her, work with her, and overlook her awkward behaviors because she's just another kid in their class.

    It's awesome.
    ReplyDelete
  13. Nigel is exactly the same way about terms of politeness. He had difficulty understanding them at first because they were not nouns or verbs or adjectives. Now he seems to understand them, and their purpose, but most of the time he forgets to say them.

    How wonderful of Austen to give you the Sorry card, for so many reasons. Simply beautiful!
    ReplyDelete
  14. That is so cool. Austen is such a fascinating kid.

    I am intrigued by this game "sorry" - never heard of that one.
    ReplyDelete
  15. Cate, it must be an American thing. It's a fairly well-known board game over here. There are numbered cards, and you drawn a number and move your piece that number of spaces with the goal of getting around the board to your home. If you draw a Sorry card, you can bump someone else back to the start and take their place on the board.
    ReplyDelete
  16. When I was a freshman in college, I suffered through a horrible bout with depression. During that time, I remember "polite coversation" was the hardest for me. I attended a small college where everyone you passed said "hello, how are you?" I felt it was so fake because if I had really told them how I was doing, they wouldn't have wanted to hear. And saying 'thank you' was hard too, but I don't know why. I didn't want people to do anything for me so thanking them seemed fake too. And "sorry" was hugely hard as well because I couldn't deal with any type of failure on my part and "sorry" seemed to mean I had failed. But it was never that I didn't feel sorry or that I didn't feel thankful; I was just holding on to myself so tightly that it was hard to give anything away for fear of loosing everything.

    It sounds as though you are giving Austen the space he needs to learn "politeness" in his own way and in his own time. Perhaps he will always be more honest with his politeness than the rest of us are and that's okay too.
    ReplyDelete
  17. Sounds like Austen "gets it" more than most of us. Caroline mentioned on my "Tissues" post that, in nursing school, she learned that you're never supposed to say "I'm sorry" to a person who's grieving or in distress because it sounds trite and really does nothing to soothe. Austen's method sounds much more heartfelt.
    ReplyDelete
  18. that was a sweet story!!!
    xo
    ReplyDelete
  19. Ya know, there's nothing fake about these kids, is there? They can see the situation for what it really is, and deal with it in a real way instead of the canned way so many of the rest of us would. What a beautiful story.
    ReplyDelete